Wednesday, February 25, 2009

2/25 - Off to Gainesville

No posts for a while - eh? We've transferred our "waiting list" time from University of Miami/Jackson Hospital to University of Florida/Shands Hospital in Gainesville. FYI - both of these hospitals are primarily affilaited with semi-pro football teams. There are allegedly medical schools at both facilities, but that appears to be a mere sideline to intercollegiate sports.
Shands appears to have a much more modern and user friendly (i.e., returning phone calls) pediatric transplant program. One other big change is that Shands encourages parents to donate a kidney, while UM discourages it. This week were going to Gainesville so Jen can be assessed as a potential kidney donor (She's a blood-type match, and I'm not). If she's a match, we may do the transplant in the next 45 days.

This weekend, we're going to Camp Boggy Creek, which is a camp for kids with medical issues. This is their Kidney and Cystic Fibrosis mixer weekend. My guess is that he goes for archery and fishing. It will be a nice break from Yu-Gi-Oh. On the other hand, I'm worried about whether Jen will enjoy cabin living.

Jake is otherwise doing very well. His brain is 100%. The kidney function is close to zero, which means that the dialysis sessions are taking longer, and are therefore more painful.