Jake's mental acuity appears to be at about the same level as when he came in to the hospital. I'm biased, but I thought he was a special kid before, and he still is.
He's so excited to finally have his wits about him, he refuses to go to sleep. He's been awake for 30 straight hours, and really needs a nap. He's just exhausted. He's been at that cranky pre-nap point for hours, but hasn't been able to make the jump. We'd love to give him something to go to sleep, but we are very conservative in the application of narcotics. He's on a feeding tube, so we can't give him the turkey and box-of-wine treatment.
He will undergo general anesthesia tomorrow (Wednesday) so they can do the kidney biopsy and put in the "permanent" chest catheter. We'll be out of the room all morning and potentially part of the afternoon, so we probably can't handle any visitors on Wednesday before 4:00 p.m. If you were going to come tomorrow, please call the room first to find out the status. The initial biopsy reading takes 24 hours, but the official reading takes up to 14 days.
In terms of parental overcompensation, we expect that he will lose his front tooth tomorrow. The normal going rate for such things is $5.00 or so. With much restraint, I think the tooth fairy decided to order a 1,400 card Yu Gi Oh lot on Ebay ($50.00 with shipping). With that kind of 1000% runaway inflation, we may be facing a return to the Gerald Ford administration and gasoline lines.
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5 comments:
Jen and Larry,
We are so happy to see that Jacob is improving with each day. One cannot imagine how they would cope with such a difficult diagnosis. The outpouring shown on your blog is a testament to your loving, devoted family. So many of us are thinking of you and praying for a full recovery.
Rochelle, Steven, Jordan & Brandon Weinstein
Jen and Larry,
We am so happy that Jacob is making positive progress. There might be many tooth fairies for Jacob instead of just the one that other kids have. Our thoughts and love continue to be with you and Jacob.
Ranana, David, Jordan, Jessica & Jamie
So good to hear that Jacob is alert. I hope he will get some sleep (and you guys). Good luck on the procedure tomorrow.
We are thinking of all of you and dovening for Jacob's immediate and complete recovery!!
With love, Gittel
Jen and Larry,
We are happy to read that Jacob is alert and moving around. We continue to think about you guys and pray that he makes a full recovery.
Steven, Michelle, Alexis, Mia and Sophia Sanford
Jake's progress is wonderful, every day and every night he will do better and better. So don't ever give up or lose hope in your faith, because God will never give up on you. Stay strong and move forward despite trouble. Angels will surround him tomorrow and God will hold him in his hands, while doctors do the exam. Everything will be Ok. Your are in our prayers and in our hearts. We love you, Lilly and Ivan
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