Sunday, May 31, 2009
Saturday, May 30, 2009
He's lounging in the buff and proudly stinky. I plan on taking him to the comic book store later for a firm grounding in the classics. Other than that, no big plans. Maybe an afternoon bike ride and then a month of time sheets for the 2 hours a day of work I was able to do.
Friday, May 29, 2009
No common view as to why creatinine is rising. Surgery group wants to do surgery to treat a potential blockage. Nephrology wants to wait and see. Same as last 2 weeks.
He's in good sprits. We played some Wii, and he beat me fair and square (as opposed to Yu Gi Oh, where he cheats sometimes).
Thursday, May 28, 2009
Wednesday, May 27, 2009
Jake also wants to thank Alec (from whom he got his middle name) for the excellent Yu Gi Oh cards.
I went home to watch the game. I was asked not to spoil the result. I won't, other than to note that Tottenham did not win the 2009 Champions League. Further, I know that Spurs did not win the 2009 FA Cup, the 2009 Premier League, or the 2010 Champions or Europa Cup.
We hope to do some arts and crafts today. He gets his reading in, but it's all either websurfing or Yu Gi Oh. We have him too well-conditioned, because he refuses to go to the playroom because there are germs there.
It seems to have stopped raining. When it rains, the local traffic is unbelievably bad - so bad that it's easier for me to stay in the room than go home for a break.
The big soccer game is on at 2:45pm. I'm currently negotiating for tv access at that time.
Tuesday, May 26, 2009
He's remarkably stoic about the whole thing. He's sick of the process, but he's not bitter.
He's a little stuffy. I hope my allergy attack isn't a cold, and I hope he didn't get it.
One of the laptops developed a tiny (at first) screen crack, and I've been watching it slowly spread across the screen. Looks like a Best Buy trip this afternoon.
Monday, May 25, 2009
Sunday, May 24, 2009
Saturday, May 23, 2009
Friday, May 22, 2009
Thursday, May 21, 2009
Wednesday, May 20, 2009
They hope to get the biopsy results back tomorrow afternoon. He's been busy working on the new Yu Gi Oh Nintendo DS game, but there's no denying that he feels that he's stuck here and that he's desperate to go back "home" to the apartment. We have no idea about the timetable for discharge.
He's certainly a sophisticated medical consumer. He just told me "This IV sucks. They put it too low on my arm." I don't know when "sucks" joined his vocabulary as an adjective, but he's remarkably perceptive about the medical goings-on.
He is pleased with the Sony "Children's Headphones" that I bought. They are built for smaller heads, and the cable connects through only one earpiece, so it's not as restraining. Worth the $15.00, and highly recommended for hospitalized kids. I know that he looks forward to the wireless headphones in the car (for the ride home).It's been cold (for Florida) and rainy all week. I may need to buy a long sleeve shirt. I've been rotating t-shirts and shorts every day.
Bloggy McBloggersson signing off. . .
We're waiting to be taken downstairs. Things are behind schedule. He hasn't noticed that he didn't (and can't) eat. Hopefully, the procedure will begin before he gets hungry.
Tuesday, May 19, 2009
Monday, May 18, 2009
Sunday, May 17, 2009
I signed up for the MLB.tv HD internet package. I'm not really in the mood to watch a slow-moving sport all night, but the picture is incredible. Anything looks good in HD. He won't let me get within three feet of the tv remote, so this (and my thermos) is all I need.
Weird morning results. They've been cutting his daily Prograf dose, and his Prograf blood level is - up. They started him on sodium bicarb yesterday, so his bicarb levels are - down. Creatinine levels went down a little (2.9 to 2.6), which is good but slow. BUN is in the 30's. He's looking a little puffy, so they are cutting his fluid IV levels.
Uneventful night. He slept well. I watched soccer and rugby on the internet. Lots of really good relegation battles in the Premier League. That's one of the best parts of European sports - the bottom three teams in the league get dropped down to a lower league, and the top three teams in the lower league get elevated. It makes games involving the bad teams much more exciting at the end of the year, and turns the "minor league" playoffs into a big deal.
I was going to sign up for mlb.tv to watch live baseball, but they black-out all Marlins (who deserve to be relegated) games and the Yankee game was already over. I'm a little afraid it could be a gateway drug back into fantasy sports.
In unrelated development (except that he's a Yankee fan), the NY Times quoted my dad in an article on travel bargains. http://www.nytimes.com/2009/05/17/travel/17prac.html
Saturday, May 16, 2009
His BUN improved somewhat, but that may be because he isn't eating much protein (or anything else). He allegedly ate more today, so we'll see if that's reflected in tomorrow's levels.
While I was out, they washed him with no-water-necessary body wash, and then took him for an ultrasound. Coming down the hall, I had a sense he wasn't in his room (probably because I couldn't smell him)
No further updates on the kidney issues. He slept well, but is still having tummy aches. One thought is that he's taking all of the morning drugs on an empty stomach. Unfortunately, he's never been a breakfast eater, and hasn't accepted my suggestions that eating would help avoid the pain. He's tired of being in the hospital, but the docs believe that waiting and watching is the best course right now.
Friday, May 15, 2009
From what tissue they did get, it doesn't look like an organ rejection, and it doesn't look like CMV or BK (two viruses that can come post-transplant).
It could be a number of things - (1) the Prograf drug level after transplant could have stunned the kidney (which the kidney can recover from on its own); (2) tubular necrosis of the kidney (this would be bad, but they need more info); or (3) a blockage in the ureter could be stopping up the kidney. They think they see a partial blockage of the uterer on the ultrasound. If this is the problem, it will require surgery. We'll see. Either way, another weekend for me on the chairbed.
On another note, the Transplant team was in this morning and said that they are very concerned about Jacob's continued trend of upward numbers. They said that there could be an obstruction in the ureter that is causing the kidney to back up. If that is the case, more surgery would be required. However, they won't know for sure until the biopsy results come in late this afternoon.
Larry is out at the apartments, moving from the 1 bedroom to the 2 bedroom. This means that when we are released from the hospital, he will finally have a bed to lay his weary head on.