Jacob realized last last night that he can have three different birthday parties - a hospital party, a party at school, and a big party at home. This made him very happy. We may need to accelerate the healing process to get a school party done before the end of the school year, but we'll see. His Kindergarten teacher, Mrs. Holsing, is bringing over some cards that his classmates made, so he'll enjoy that.
Our "party" will probably be in the conference room in the playroom. I'm sure Jen went overboard on the food, like we always do. She spent a few hours last night wrapping his presents, which didn't seem necessary to me. Whatever. I think we now have every toy ever made. When I was a boy, we played with a box and a piece of string, and darn it, we were thankful. No, wait . . . I seem to recall having every toy ever made. Johnny Lightning cars. Matchbox cars. Lionel trains. Tyco cars and trains. Super Tinkertoys. Pong. Atari 2600 and Atari 800. Never mind.
In honor of his birthday, I brought him his favorite foods last night - cole slaw and pickles from Katz' delicatessen. They are a little high in sodium, so we had to go bland the rest of the day to fit them in. I guess he has yiddish (or yodish, as per last night's blog) tastes.
He's on his usual cycle. His numbers at night look great, and the blood pressure creeps up during the day. He's on a new cycle of medications, so we need to stay the course for 4 or 5 days to get to a "steady state", and see how he does on that. We'll probably move to the regular pediatric floor in a day or two, but will continue under the supervision of the ICU docs.
The blood pressure issues appear to be a general kidney disease issue (related to renin output), and don't appear to be related to specific dialysis treatments. Therefore, the current track is to continue hemodialysis treatments monday/wednesday/friday and to try to convert to peridialysis at the end of the summer.
Our "party" will probably be in the conference room in the playroom. I'm sure Jen went overboard on the food, like we always do. She spent a few hours last night wrapping his presents, which didn't seem necessary to me. Whatever. I think we now have every toy ever made. When I was a boy, we played with a box and a piece of string, and darn it, we were thankful. No, wait . . . I seem to recall having every toy ever made. Johnny Lightning cars. Matchbox cars. Lionel trains. Tyco cars and trains. Super Tinkertoys. Pong. Atari 2600 and Atari 800. Never mind.
In honor of his birthday, I brought him his favorite foods last night - cole slaw and pickles from Katz' delicatessen. They are a little high in sodium, so we had to go bland the rest of the day to fit them in. I guess he has yiddish (or yodish, as per last night's blog) tastes.
He's on his usual cycle. His numbers at night look great, and the blood pressure creeps up during the day. He's on a new cycle of medications, so we need to stay the course for 4 or 5 days to get to a "steady state", and see how he does on that. We'll probably move to the regular pediatric floor in a day or two, but will continue under the supervision of the ICU docs.
The blood pressure issues appear to be a general kidney disease issue (related to renin output), and don't appear to be related to specific dialysis treatments. Therefore, the current track is to continue hemodialysis treatments monday/wednesday/friday and to try to convert to peridialysis at the end of the summer.
4 comments:
Jake - Have a fantastic Birthday!!! Enjoy every minute of it! Glad to hear you're on the mend!
Larry - don't forget Donkey Kong on your Commodore 64!
Love Always, Eric & the Goshen Crew
Larry and Jake. This message is from my family and friends in Colombia:
"We wish Jake a happy, happy birthday, this is with all our love, from our hearts, we hope God continues blessing him and his parents. We wish him to have many birthdays and health in the years to come. Congratulations to his parents for having such a Beloved and Beautiful Angel in their lives.
We pray everyday for a complete and full recovery of Jake.
Love, Blanquita, Herminda, Ana Aleida, Willitan, Miguelito Sandra, Chavita, The Reverend Hernan Orjuela from "El Minuto de Dios" (A minute with God - radio Station).
Jacob,
Happy, happy birthday! And, many, many more even better ones to come!
Karen & Jenna Kallman
Guys,
Wish I could be there to celebrate the tremendous happiness of this day. It is truly a momentous occasion. Oyster kisses to the kid-man from Apalachicola.
Love,
Jen
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