Friday, May 18, 2007

5/18- Day 2 - A new routine


Today is our first day of outpatient dialysis. He has dialysis every Monday, Wednesday and Friday at 8:00 a.m. That schedule will probably continue until the end of the summer, and then we'll reevaluate.

This morning he was so tired that he stayed sound asleep from the bed through the car trip through the hook up to the dialysis machine. He was sleeping so deeply that it was kind of scary, but we have to remember that he stayed up late and had a big day yesterday. I guess it's better than being tired and cranky . . .

We don't know how he'll react to going back to the hospital as an outpatient. He's been fairly stoic about medical treatment - except his medications, which he hates. He had some digestion problems yesterday, so they've added Tums to every meal and snack. There's no problem getting him to take those, because the tablets come in tropical fruit and berry flavors. Chalky, but yummy.

The house is a disaster area due to the construction. If you visit, don't bring stuff (except food, which is always good), because we don't have any room. He already has every toy ever made.

On TV they announced the introduction of a new series of Yu Gi Oh cards, which will provide bribe-fodder for a little while. Other than a visit to the trading card store, we'll probably sit tight at home for a few days. We'd like to take him to the movies, but 1) we're not over the germ thing just yet, and 2) I doubt they have the low sodium popcorn he eats. We still have 20 hours of Yu Gi Oh DVDs to watch, and Jen has 7 weeks of Boston Legal, Gray's Anatomy and Law & Order to catch up with. As for me, I can now watch the Giro (go Liquigas!) on the internet and the Floyd Landis trial.

2 comments:

Anonymous said...

Hope good things keep happening for you. Jacob has picked the greatest parents and his determination got him home and comfy and doing well.
For adult pleasures, please do not underestimate the joys of the Phil Spector trial on Court T.V.
Love to you all!!
Lonnie

Anonymous said...

Home, home, home! Yippy! We're so happy for all of you. That's so cute to hear that you like fruity-flavored Tums -- just like Gianpaul. You boys are so silly. I'm glad it helps the medicine go down.

We're so proud of you, Jake. We know all the medicines and treatments are not easy. Keep being the strong little Scoobie that you are. We're all going to have lots of fun this summer!

xoxo
Camille, Paul, Gianpaul & Giuliana