Friday, May 4, 2007

5/4 - The prognosis

Jake had his MRI and EEG. It was an excruciating day, because you have to refrain from food pre-MRI, and all he wanted all day long was food. He got more and more worked up and grumpy about hunger, and it ultimately took three doses of the sleep medicine to put him out for the MRI.

The neurologist's opinion is what I expected - It's either very scary or somewhat reassuring, depending on your life outlook. He has multiple brain lesions, which could be impairing his functions. Sounds awful, doesn't it? The neurologist thinks they were caused by the high blood pressure.

However, these kinds of lesions are treatable and the body cures them on its own. In layman's terms (which is all I've got, until our friend Jon the neurologist guest blogs), when you get really high pressure, the brain gets a bit leaky and brain fluid leaks into the blood. Take away the pressure, and the lesions start to resolve themselves. The MRI shows no bleeding, no pools, no bursting. It's kind of like a brain bruise. The MRI also shows the infarctions from the prior strokes have essentially disappeared. It's my belief that the same thing will happen with the lesions.

The neurologist has suggested there's a possibility that the hallucinations and the eyesight issues could be from the brain lesions and not the Adavan. We'll keep an eye out on this, but my parental instincts and our previous experience with painkillers make me believe that it's a pharmaceutical side effect. On the other hand, if the hallucinations are going to continue until the lesions completely disappear (which can be three to six weeks for them to resolve on the MRI), our lives are really going to stink for the coming weeks.

So - where does this leave us? He'll be on anti-seizure medicine (Depakote) for a while. We'll continue to carefully watch his blood pressure. We (i.e., not Larry, but the rest of the family) will continue to second guess every physician in the hospital as to where the blood pressure issues are coming from and whether this latest event was avoidable.

P.S. - the neurologist that we met with is the same one who gave us the "gruff" assessment last month. Today's consult was a pleasure. Call off the hit squad (you know who you are).

One special acknowledgement. I'd mentioned in a previous entry that Jake likes Gushers. Our friend Camille and her son GianPaul created a "Gushers tree", which is like a Christmas tree made out of packages of Gushers. You really have to see it.

3 comments:

Anonymous said...

Larry and Jen:

At this time of the game, just .9 seconds before the end of the playoffs, anything is valid to win.
Would you consider to get a 2nd. opinion from another neurologist, pediatrician, infectologist, etc. (out the hospital network)?

I would do this and more to save my son. There are no frontiers (borders). Everything is valid. This is a big country and have wonderful wonderful medical, expert people.

My prayers are with you. Probably this time is very difficult in your lives, but remember that is just before sunset when it gets the darker.

Love

Lilly and Ivan

P.D. MIRACLES OCCUR EVERY DAY.
LET'S HAVE FAITH, LET'S PRAY TOGETHER.

Anonymous said...

Larry:

These are the best two teams in the country for Neurological issues in children, Just take a look! (BOTH IN FL).

Love,

Lilly

Miami Children's Hospital provides an intraoperative neuro-navigational system that allows the neurosurgeon to integrate preoperative imagery with the operative procedure. There are plans for an intraoperative MRI scanner. These and many other advances, including the development of an MRI Functional Imagery Center allow the neurosurgeons to pinpoint brain function and motor skills, thereby greatly improving surgical outcomes.

The accomplishments of the Division of Neurosurgery are the result of the renowned doctors and treatment teams who guide its activities. Doctors Glenn Morrison and John Ragheb are the only neurosurgeons in South Florida to be certified by the American Board of Pediatric Neurological Surgery. They are recently joined by Sanjiv Bhatia and David Sandberg, fellowship trained pediatric neurosurgeons.

The expertise and success of our neurosurgery team, which is comprised of Doctors Glenn Morrison, John Ragheb, Sanjiv Bhatia and David Sandberg, and the MCH Brain Institute program both ensure that Miami Children's Hospital will remain at the forefront of pediatric neurological surgery -- not only in South Florida, but also around the world.

For more information or to make an appointment, please contact the Miami Children's Hospital Division of Neurosurgery at (305) 662-8386.

http://www.mch.com/clinical/neurosurgery/

ANOTHER ONE:

Hector James, M.D., F.A.A.P.
Pediatric Neurosurgery

Hector James, M.D., a pediatric neurosurgeon, provides state-of-the-art neurosurgical care for infants, children, and adolescents in greater Jacksonville, Florida. He is based at The Lucy Gooding Pediatric Neurosurgery Center at Wolfson Children's Hospital/University of Florida, Jacksonville.

The Lucy Gooding Charitable Foundation Trust was established in 1988 by Lucy B. Gooding, whose husband, Henry Gooding, was the Founder and President of the Independent Life and Accident Insurance Company. Its mission is to provide funds to organizations that provide services directly to children and that provide relief services to the community as a whole. In 2005, it provided the funding necessary to help establish a new Pediatric Neurosurgery Center at Wolfson Children's Hospital/University of Florida, Jacksonville, to help solidify a regional center for comprehensive neurosurgical care for children.

Dr.�Hector James is certified by the American Board of Neurological Surgery and by the American Board of Pediatric Neurological Surgery.

Neurosurgeons provide surgical treatment options related to disorders of the nervous system, which includes diseases of the brain, spinal cord, nerves, and muscles. Common neurological conditions that Dr.�James treats include the following:

Craniosynostosis/craniofacial disorders
Hydrocephalus
Epilepsy (seizures)
Headaches/ migraines
Tumors of the nervous system
Spasticity
Spina bifida

Dr. James has founded the Foundation for Pediatric and Laser Neurosurgery, Inc., and encourages you to access the many educational resources on their website.

Please also explore this practice website for information about Dr. James, our services, appointments, and about neurological concerns. Please contact us with any questions or to request an appointment.


Pediatric Neurosurgery, Hector James, M.D.
www.childneurosurgery.com
836 Prudential Drive
Pavilion Building, Suite 1005
Jacksonville, Florida 32207
Tel: 904.398.5201
Fax: 904.398.8838
map

Anonymous said...

Just an added comment--Dr. Ragheb's has a child at Miami Country Day; it's a small world! I have only heard amazing things about him. I know his wife from our years at Cushman.
Hugs and Kisses to you Jacob,
Mrs. V.